{background info- Hello! My name is Jenifer and this is the story of my high-risk pregnancy. ?I am currently pregnant with my eighth child (A BOY!!) and was diagnosed with Placenta Previa and Placenta Percreta. ?I also have Beta Thalassemia which contributes to severe anemia. ?While this has been a difficult pregnancy and we anticipate a difficult delivery, IT IS WORTH IT! ?
We NEVER regret our decision to get pregnant with this baby and are so grateful for this experience!!
?Accreta affects about 1 in 2500 pregnancies. ?(It is pretty rare!) ?If you have had previous uterine surgeries, your risk of Accreta increases to 1 in 500. ?I have had two previous c-section and one D&C, following a miscarriage. ?Although I was at risk, prior to being diagnosed with this condition, I never knew Placenta Accreta existed. ?
Would I have decided not to have another baby if I knew I had a greater risk of Accreta?? ?NO. ?To me, the gift of bringing a baby into the world outweighs the risk of something being wrong. ?For years I knew I had another little boy waiting to come to my family. ?This pregnancy is a gift, I believe LIFE is worth the risk. ?
I would however, have opted NOT to have a D&C for my miscarriage if I knew it would threaten my ability to have save pregnancies in the future. ?I would also NEVER choose a c-section for convenience-- my c-sections were both emergency. ?I am also glad that I found a doctor willing to deliver my last baby VBA2C. ?Vaginal deliveries are better and safer. ?(Abortions also greatly increase your risk of Accreta.) ?Surgery in your uterus DOES affect your ability to have healthy babies in the future. ?Mothers need to be made aware of this BEFORE we choose optional surgeries.
What is Accreta? ?Accreta is where your placenta attaches to your uterine wall instead of to the lining of your uterus. ?There are three different levels-- Accreta, Increta, and Percreta. ?Accreta is where your placenta is attached to the first layer of uterine wall, deeper than the lining-- often Accreta's can still deliver and save the uterus. ?Increta is where the placenta has grown into the muscle wall of the uterus-- this usually requires a c-section/hysterectomy. ?The rarest form of Accreta is Percreta where the placenta actually grows through the wall of the uterus and attaches to other organs in the?abdomen? ?Percreta?is very dangerous and will require a c-section and repair of other internal organs that are affected. ?Percreta?affects only 6% of all who have Accreta. ?Most commonly, Percreta involves the uterus which is in front of the uterus (anterior placenta). ?Sometimes Percreta?involves?the bowels with a posterior placenta. ?Rarely it involves the uterus, bladder, cervix and bowels... ?this is my condition.
Often, Placenta Previa and Accreta or?Percreta?go together. ?Placenta Previa means your placenta is at the bottom of your uterus over your cervix. ?(Most healthy placentas attach high up in the uterus.) ?When the placenta is low, it is more likely to be positioned over old c-section scars (which are usually in the bottom front of your uterus.) ?It is easier for the placenta to attach and seep through old scar tissue than it is for placenta to attach to healthy uterine wall-- this makes sense to me. ?It is important to note, however, that you can have?Percreta?or even Accreta on your first pregnancy, or without any previous uterine surgeries. ?This condition is just one of those things that could happen in life.
Accreta is most dangerous when undetected prior to birth. ?After the baby is delivered, the doctor will try to deliver the placenta. ?When the placenta is attached to the uterine lining, it will come out easily. ?When the placenta is attached to the wall of the uterus, it will be difficult to remove after birth. ?Undetected?Accreta?will usually result in a placenta that tears during delivery- some comes out and some remains inside the uterus?hemorrhaging.? While they are cleaning up the recently delivered baby, the mother will start to feel sick, often begin throwing up and then will begin to?hemorrhage? ?Wise doctors will recognize the?hemorrhage?and rush the mother into an emergency hysterectomy where the uterus will be removed to stop the bleeding. ?If the mother has an undetected Percreta, as they remove the uterus, the bladder will tear and they will need to reconstruct the bladder also. ?Diagnosing this condition prior to birth is so important.
Accreta can be diagnosed by careful ultrasound?technicians?pretty early in pregnancy.?
Here are some warning signs that helped them diagnose me--
1- I bled early in my pregnancy (the first 12 weeks). ?I believe that I miscarried a twin and in the process shed much of my natural uterine lining making it easier for the remaining placenta to attach directly to the uterine wall. ?Accreta is not supposed to cause bleeding early in your pregnancy-- but, i do know others who have had a similar experience.
2- Early ultrasound showed a low-lying placenta. ?Placenta?Previa?paired with previous c-sections should immediately raise a red flag that Accreta might be present.
3- My placenta had Lacunae or black lakes in it. ?In the ultrasound, my placenta looked like Swiss cheese. ?It has gotten more swiss cheesey as it has grown, but the black lakes were certainly present early on and were good early warning signs.
4- ?I just knew something was wrong. ?Although my OB continually assured me that things were "fine" ?I just didn't feel like this was a normal pregnancy. ?I pushed to see a specialist and the minute the fetal medicine doctor saw my ultrasound he diagnosed me. ?Trust that gut feeling you have and seek the proper diagnosis.
5- Scoping my bladder showed placenta vessels invading.
My placenta is on the anterior wall of my uterus adhered to the myometrium, directly over my previous c-section scars, and has spread (like a cancer) to other organs in my abdomen, mainly my bladder, my cervix, and my colon. ?Doctors also note that my Percreta covers almost my whole placenta, not a small portion. ?They are hoping to begin steroid shots at 32 weeks and deliver with a large team of specialists (and a lot of waiting blood) no later than 34 weeks (that will be around June 1st). ?If I begin bleeding prior to 32 weeks, they will life flight me to OHSU. ?Spotting or bleeding will probably mean I'll be hospitalized prior to 32 weeks.
My delivery will be a scheduled surgery in the main OR. ?They expect over 20 doctors and it could take up to 8 or 9 hours. ?The last two?Percreta?patients at OHSU required 40 units of blood transfused and had a very intense surgery. ?A healthy adult only has about 10-12 units of blood in their body. ?Yeah, that is a lot of blood loss!
I am currently being treated by a team of specialists at OHSU. ?The head doctor I work with is in Perinatology and Fetal Medicine, my surgeon is in Gynecology/Oncology, I have a Hematologist that specializes in Obstetrics and a Urologist. ?Additionally they are coordinating with the blood bank to ensure there is enough blood ready for my extensive surgery and I've met with Anesthesiologists. ?In time, I will meet the NICU team. ?Yes, I have MANY doctor appointments. ?We feel SO blessed to have this baby and to be in the hands of skilled doctors. ?
I have been on complete pelvic rest and modified bed rest since 12 weeks of pregnancy. ?My husband and other kind family members are taking care of my home and family while I spend most of my days sitting or laying. ?This time of resting has been difficult, but it has also been a great gift. ?I am thankful for every week that this baby is growing bigger and healthy inside of my womb. ?I can't wait to meet this little guy-- our grand finale!!
This is a record of my pregnancy for my family and for those of you who may be experiencing something similar. ?Yes, I share a lot, perhaps too much. ?Thank you for being a part of this journey with me. ?I am one who learns much from the experiences of others and I'm happy to share my experience with you, in the hopes that somehow it may help.}
Week 23-- ?
Doctor Appointments.
Hematology-
They continue to do a lot of blood work to see if I'm having a hemalytic reaction to my blood transfusions.
I feel good and my blood looks good, so no transfusions.
She explained a lot of blood stuff that went over my head. ?Basically, I needed the assurance that they would be prepared with blood when the time comes for my surgery.
This doctor wants me to call her directly if I am concerned or begin to feel bad. ?I had been trying to leave messages with her nurses or nurse practitioners when I felt I was having a reaction and she said in the future contact her directly. ?Thank goodness!
Blood is looking good this month!
She ordered more lab work and sent me over to do labs following our appointment.
Perinatology-
Prior to my appointment I had another intense ultrasound which lasted over an hour- both external and vaginally.
The baby looks good, but my placenta is not good.
The whole bottom of my uterus looks like Swiss cheese placenta... there is no?discernible?defining line where the uterus usually is.
I can not accurately describe what it is like to see my ultrasound. ?It is almost UNBELIEVABLE.
Your uterus is like a balloon, on the right (or front of your body) is your bladder. ?The tie at the bottom is your cervix that opens during delivery to let out the baby and placenta, and to the left (or back) is your bowels and intestines. ?Other organs are squished all around your continually expanding balloon uterus.
On an ultrasound you can usually see the border of your uterus. ?It looks like a white line, in the shape of a big circle. ?The placenta is usually inside the border of the uterus. ?The bladder also looks like a smaller circular spot next to your uterus, and your cervix looks like a thick, fat carrot at the bottom.
On my ultrasound the whole bottom of my uterus looks like a blanket of swiss cheese placenta. ?You can't really see ANY uterus border... it's just placenta with a lot of small lakes of blood. ?Amidst this placenta there is a bigger lake-like thing, that is my bladder. ?There is a darker, hard to make out carrot shape, that is my cervix, and there is a mess of placenta and bowel. ?It's bad looking.
My room was full of doctors and residents and a sonographer and an even better sonographer and I'm asking questions like, "Is that my cervix?" ?"Is that my bladder?" ?And they are all looking at the screen with this look of "Wow. ?That's bad." ?I say, "So, they'll probably have to remove my cervix too." ?And they say, "Yes, definitely." ?It is UNREAL.
The sonographer was really trying to see the back of my uterus to determine how my placenta was involved with my bowels and intestine. ?She was using a stick ultrasound up INSIDE me. ?As she was trying to see deeper back into me she kept asking me to scoot down further. ?I finally laughed and told her I could scoot further down, but she would need to do an episiotomy if she was actually going to see any further inside me. ?(Sorry if that was too graphic.) ?Just another fun day on the ultrasound table.
My doctor thinks I look great and am doing well. ?She said she will not rest easy until my uterus is out of my body.
The "worst case" scenario?is that I will need to do some reconstructive surgery of my bladder and my bowels after delivery. ?(As if I can even say worst case, because I suppose it could ALWAYS be worse.) ?That surgery will involve a bag for urine and a?separate?bag for stool coming out of my abdomen for 4 months before they can reattach my bowels and bladder. ?(I still need to read up on this stuff-- I know a few people who have had this, is it called a colostomy?) ?Blah!! ?That didn't sound too fun to me. ?Hopefully it won't come to that.
This doctor said, "Don't worry, Dr. M (the oncology surgeon) is masterful with bowel reconstruction. ?She's a great surgeon." ?I am comforted by this, but would rather NOT need a masterful bowel reconstruction. ?I told my Perinatolgist that Dr. M seemed to think my surgery wasn't too horrible. ?With a laugh (meaning, yes, it is horrible), she explained to me that was NOT because it wasn't a tough surgery, it was only because I am skinny and in good shape. ?She said that I should heal well and am easier to operate on than someone heavier. ?I am glad I have SOMETHING positive going for me (I bet even that could change after 2 more months of low activity and high hunger... ha!)
Test Results.
CBC- Hemoglobin 8.3, Hematocrit 27
Echocardiogram-- very normal!
Ultrasound- shows?Percreta?in the anterior and posterior part of my uterus... blah.
Physically at 23 weeks.
I still really feel good. ?I'm grateful that my mom is here caring for my home and family so that I can rest.
I try to get out often and visit with friends.
I do not lay down all the time (it makes me feel horrible!)
I sit and walk a bit, take car trips, go to church, watch movies and plays, and do things with my family.
I am not lifting heavy things, running or climbing stairs, driving, or walking for long periods of time.
(I am SO grateful I am NOT bleeding!!)
I do nap or rest frequently. ?I am rarely alone at home or in the car (in case I begin to hemorrhage.)
I am in a lot of lower abdomen pain of I do too much, so i feel good about my limited activity level.
Mentally at 23 weeks.
We have had friends come visit and book groups at my house. ?My kids often invite friends over and I try to continue watching my kids play basketball or sing in their middle school play. ?Todd and I sneak out to dinner and a movie when we can. ?The more social I remain the happier my soul seems to be. ?I am so grateful for all that I can still do so I don't spend much time focused on what I'm not doing.
I wrote a big LONG post about how I deal with each item on my "not so good" list. ?(I'll publish that tomorrow in case you want to read for a few hours...)
Basically, my mentality is-- ?Life is good, even when it's hard.
Things could always be worse.
Most hard things come hand in hand with great blessings-- treasures of learning and growth that you would never have without experience.
And perspective-- ?People are going through hard things every day.
If they can do it, I can too.
A little "CRAP" in my life is nothing I can't handle.
Sometimes I get down and whine and tantrum... and those are good days too. ?They make me appreciate the times when I feel faithful.
Today, I feel faithful.
Life is good, with or without proper plumbing.
Please, take a second the next time you are sitting on the toilet and just BE GRATEFUL for all you CAN do ?(or doo doo).
ha!
Source: http://toddnjenifermoss.blogspot.com/2013/03/week-23-pregnant-with-placenta.html
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